All I’ve done for the past few days is sleep and take painkillers. It hasn’t been a good few days.

The heat has been aweful too. It makes my symptoms worse. I’ve had fans and air coolers working overtime. Surprised they haven’t blown up.

I used to love hot sunny days but I just can’t cope with them anymore. But the heat does explain the pain so hence the pain killers and explains all the sleep my fatigue has been sky high too. I’ve been considering buying an air conditioner.

It doesn’t help that my room is west facing. When the sun comes round in the afternoon my room heats up like a chuffing oven. Having the window open and the door open in an attempt to get some air moving. The air coolers I have in there struggles. It doesn’t do much to cool the air down.

I’ve tired to do a few things in the garden but all I managed to do today was to tie up the plants in the greenhouse. That was hard and it only took 5 minutes.

I’ve been struggling to find something decent to sleep to on Netflix as well. It’s feeling like everything is against me at the moment.

It just feels hard trying to explain how I feel and what’s up with me at the moment. I feel like a kid at times. I just don’t know the words to explain things anymore. It’s hard and gets me down. I should be getting some help soon though I’ve been put back on a waiting list with the local counselling service.

I think I’ve also been inadvertently volunteered to help out with the local ms society group too. Not sure yet what that will involve but have a meeting with them on Wednesday night. Just hope that goes ok.

On a brighter note though it’s my birthday in a few days. Just hope it will be better than last year when I had to have a CT scan. Things can only be better this time.

I’ve had my moan now so I’ll sign off and hope to see you soon.

Love and light.