Pain, pain, more pain and oh yeah nearly forgot, pain. There’s also been feelings of love, friendship, loneliness and being generally uncomfortable.
So the pains been there again but what feels like forever. My pain killers are being reduced which I think is making the pain worse. From a chat with people on Facebook (you know where everyone is a brain surgeon with a second PHD in law) it looks like the burning patches of skin is actually nerve pain. They’ve been getting worse and making me feel unbelievably hot. Having to have fans on me most of the time or aircon running 24/7. I’m a bit worried about it getting worse before it gets better but I have to trust what the doctors and nurses have said. Some of the ms nurses came to the last MS Cafe and one of them said there will be plan behind changes to my medication. That makes it feel a bit better. I have no idea what this plan is but have to have faith it will work out in the end.
Knitting wise the session recently have been good. Nice and chilled out. I’ve been working on some bunting for the Jubilee Centre open day. It might sound pointless but I’m using it as practice and it’s helped my knitting come along leaps and bounds. It’s getting neater, the tensions getting better and the finished bits are starting to look good.
I was asked by the group coordinator of the local MS group if I wanted to do some extra training to help people out and offer some support. I thought this was a great idea. I’ve said yes and now just need to wait and see what happens next.
My sisters have been a great help to me this week along with people from the spiritualist church and people from the knitting group. It’s great to feel that I’m liked and loved by people. It brightens my day and makes me feel better. There has only been one slip up and that was when I was forgotten about for development group. The person that did it has a very valid reason and has a lot going on. Yes I felt upset and had a bit of a cry when it happened but everything worked out for the best in the end and I feel that the friendship has developed that bit more.
Recently when I’ve been watching wildlife documentaries I seem to be making up a random commentary that’s going on in my head. It’s like the animals are saying stuff like “oooooo you bitch, I nearly got eaten then” and other stuff like that. Issue being I just start chuckling randomly which I think makes me look more insane than I already am. Oh well, am I bothered? No dear I ain’t.
“I like your new room grandad. Can my doll house have one”? I’m finding this advert really annoying at the moment. No idea why but it really gets on my tits. Other things I’m watching at the moment are drag race season 10, finished season 9 and I was glad that my favourite queen won. Go on Sasha Valour! Werk that runway sweetie. I’ve also been watching Queer Eye for the Straight Guy. That’s cool and there are some really nice people in it and they seem to change so many peoples lives for the better. It’s great, might make you shed a tear (in a nice way). I got through the first season of Glee on Netflix, and well into season 1 of Ugly Betty on amazon prime. Both shows I used to love when they were on tv. Advantage now is that I don’t have to wait a week for the next episode, it’s on straight after. I hate having to wait, I’m so impatient.
At church on Saturday a guy called Bob Dawson was on. He was really really good. I found the messages he gave we’re just spot on for everyone. He seemed to indicate that an old foster sister I had that has since passed needed a bit of help. So I sent healing out to her to help on her journey.
Forgot to mention that last week (Tuesday) there were some international mediums on that have been working with Mavis Pitilla. That was a great night, the church was absolutely rammed but my mum was there with me and helped me to keep my head in check. But the mediums that were on were all really lovely people and they did an amazing job. I got chance to talk to them after the service. Despite the church being like a pressure cooker and the heat being almost unbearable the did a fabulous job. Category was 6 medium extravaganza.
That enough from me but in the words of Momma Ru “if you can’t love yourself how in the hell you gonna love somebody else”.
Love and Light